Living With Valve Disease

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  • Reader Story

    Terry Johnson's story: “Did I recognize the signs originally? No, because I had the "it must be my age" or "it could never happen to me" that is too common among men as…

    I always thought heart surgery was for all those much older than me. I’m not overweight and am very active. But that all changed one afternoon while helping my son…
    34 days ago | Learning from Others
  • Reader Story

    Charlene Linden's story

    The aging hearts of our loved ones are multifaceted for sure. Kind, funny, witty, intelligent, brave, accomplished, and if we’re lucky, loving with a lifetime of experiences all wrapped up…
    123 days ago | Learning from Others
  • Reader Story

    Barbi Flynn's story: “If you are feeling any of these symptoms, go in and get checked. If they don't believe you, tell them my story.“

    Tonight I’m feeling an overwhelming feeling that I need to share how I discovered my heart disease. For some time I have had shortness of breath, fatigue, cold sweats, dizziness, waking…
    369 days ago
  • Reader Story

    Ron Hargrave's story: “It brought my life back as it was.“

    Singing has always been central to Ron Hargrave’s life. As a young man he even went to Hollywood to write songs and perform. But at age 89, he began feeling…
    735 days ago

Terry Johnson's story: “Did I recognize the signs originally? No, because I had the "it must be my age" or "it could never happen to me" that is too common among men as…

Charlene Linden's story

Barbi Flynn's story: “If you are feeling any of these symptoms, go in and get checked. If they don't believe you, tell them my story.“

Ron Hargrave's story: “It brought my life back as it was.“

  • Reader Story
    27 minutes ago
    Katie Eddington's story
    “No two days are the same, each one is taken in stride, and every moment counted as a blessing.“
  • Reader Story
    2 days ago
    Shannon's story
    Hello my name is Shannon on Feb 14, 2016 I found out I have a Bicuspid aortic valve and ascending…
  • Articles
    6 days ago
    Heart Valve Disease Awareness Day 2020 Blog Carnival Articles
    In recognition of Heart Valve Disease Awareness Day 2020, campaign partners from across the country have submitted a variety of…
  • Reader Story
    6 days ago
    Richard Berger's story
    In 1980 at the age of 32 I was diagnosed with a Bicuspid Aortic Valve which needed replacing, this was…
  • Reader Story
    7 days ago
    Phillip Warlow's story
    “From every wound there is a scar, and every scar tells a story. A story that says, I survived...“
  • Reader Story
    7 days ago
    Samuel's story
    “Lesson learned and shared; "take every and any chest discomfort seriously" especially if you have high blood pressure and high cholesterol. You can ask your doctor to test your blood for the…
  • Reader Story
    7 days ago
    Charlene's story
    “Had great cardiologist and surgeon.  I'm still doing great now.“
  • Reader Story
    13 days ago
    Jacinda Gonzales-Lopez's story
    “I am a structural heart nursing coordinator who has been involved in this therapy for almost 10 years.“
  • Reader Story
    13 days ago
    Sarah Thompson's story
    “I had to have my aortic valve replaced along with an aortic aneurysm repaired at the age of 35!“
  • Reader Story
    14 days ago
    Carrie Johnson's story
    “Everyone needs to stay informed.“
  • Reader Story
    14 days ago
    Scott Green's story
    “I thought I was invincible. That sort of thinking would have left my family without their Dad way too soon.“
  • Reader Story
    14 days ago
    Jonita Daniels-Coleman's story
    “Know the signs and ACT!!!!! Heart valve disease can be treated.“

Recent Stories

  • Katie Eddington's story: “No two days are the same, each one is taken in stride, and every moment counted as a blessing.“
    Learning from Others
  • Shannon's story
    Learning from Others
  • Richard Berger's story
    Learning from Others
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Recent Comments

  • Hugo A Bejar on Nina Bamford's Story
    “cool”
  • Onyinye Felicity on Ask a Texas Heart Institute Doctor
    “Am a lady and my chest is always paining me. I went for x-ray and...”
  • Debra Dye on Jeff Fielding's Story
    “Thanks for sharing your story I am about to undergo valve replacement surgery soon. ...”
  • Chris Herbert on Jeff Fielding's Story
    “This is a great story, Jeff.”

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1700 K Street NW, Suite 740
Washington, DC 20006
202-293-2856
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About Living With Valve Disease

Living with Valve Disease is a project of the Alliance for Aging Research © 2015
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Share Your Story

We want to hear from you! Use the form below to tell us about your or your loved one's experience with heart valve disease. If you can, share the type of valve disease, when it was diagnosed, and what type of treatment received (if applicable).

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*Note that submitted stories will be reviewed and may be featured on this site, on www.ValveDiseaseDay.org, or through other Alliance for Aging Research educational outreach.