Living With Valve Disease

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  • Reader Story

    Thomas Muellner's story: “If you’re lucky enough to know you’re due for maintenance, it’s best to move early — infectious diseases be damned.“

    You’d never guess that Thomas Muellner, a writer, musician, rec soccer player, and world traveler is a three times heart surgery survivor. Thomas was born with a rare heart condition…
    94 days ago | Learning from Others
  • Reader Story

    Christine R's story: “Patient advocacy and peer to peer support is the cornerstone of strength for one's journey.“

    I am a survivor of heart valve disease. My journey began at a routine physical when my primary care physician detected a heart murmur. Upon being referred to a specialist,…
    254 days ago | Learning from Others
  • Reader Story

    Adele's story: “When I found this page, I was like, yes! I'm home! There are other people just like me or who least understand the feeling. “

    My name is Adele and I was born and raised in China until the age of 9.  According to my adoption paper, a police man found me on the street…
    454 days ago | Learning from Others
  • Reader Story

    Alaina Bronski's story: “After numerous failed trips the to ER and my primary care physician that fell on deaf ears, I took my heart into my own hands and made an appointment with…

    I followed my heart. After numerous failed trips the to ER and my primary care physician that fell on deaf ears, I took my heart into my own hands and…
    581 days ago | Learning from Others

Thomas Muellner's story: “If you’re lucky enough to know you’re due for maintenance, it’s best to move early — infectious diseases be damned.“

Christine R's story: “Patient advocacy and peer to peer support is the cornerstone of strength for one's journey.“

Adele's story: “When I found this page, I was like, yes! I'm home! There are other people just like me or who least understand the feeling. “

Alaina Bronski's story: “After numerous failed trips the to ER and my primary care physician that fell on deaf ears, I took my heart into my own hands and made an appointment with…

  • Publications
    6 days ago
    Resource on Transcatheter Mitral Valve Repair by Abbott
    Abbott has created a brochure for patients that are planning to undergo transcatheter mitral valve repair with Mitraclip therapy. This…
  • Publications
    48 days ago
    "Understanding Aortic Stenosis & Valve Replacement" Brochure from Mended Hearts
    Mended Hearts has made a patient brochure on aortic stenosis. The comprehensive resource includes: A description of physical heart changes that…
  • Publications
    71 days ago
    Resource for heart surgery patients: "A Patient’s Guide to Heart Valve Surgery" by Medtronic
    Medtronic’s guide provides an overview for patients who have had or will have heart valve surgery and their caregivers. This…
  • Publications
    87 days ago
    2021 Valve Disease Day Highlights Brochure Now Available!
    The official Heart Valve Disease Awareness Day 2021 Highlights and Overview brochure is now available! The campaign reached over 368 million…
  • General Information
    119 days ago
    “Target: Aortic Stenosis” Initiative from the American Heart Association
    The Alliance for Aging Research, the Association of Black Cardiologists, and Heart Valve Voice US are collaborating with the American…
  • Other
    247 days ago
    Valve Disease Day Virtual Celebration
    Join the Valve Disease Day Campaign on February 22nd for its Fifth Anniversary Annual Celebration from the comfort of your home!…
  • Other
    247 days ago
    Valve Disease Day Twitter Chat
    The Alliance for Aging Research, Association of Black Cardiologists, and BlackDoctor.org will co-host this year’s Twitter chat on valve disease…
  • Other
    247 days ago
    Valve Disease Day Facebook Live Interview
    Join the Valve Disease Day campaign on February 16th at 1 PM ET for a Facebook Live discussion, co-hosted by…
  • Reader Story
    254 days ago
    Christine R's story
    “Patient advocacy and peer to peer support is the cornerstone of strength for one's journey.“
  • Videos
    385 days ago
    Valve disease and heart failure
    Watch this short video from CardioVisual to learn more about how abnormal heart valves can lead to heart failure.
  • General Information
    392 days ago
    6 Tips to Manage Anxiety Before Your TAVR Procedure
    If you have severe aortic stenosis and find yourself feeling anxious about your diagnosis and your upcoming transcatheter aortic valve…
  • General Information
    399 days ago
    National Survey Of Heart Valve Patients Shows Importance Of Seeking Treatment Early
    A new national survey conducted by HeartValveSurgery.com (HVS), and supported by Medtronic, uncovered patient perceptions about heart valve disease and…

Recent Stories

  • Christine R's story: “Patient advocacy and peer to peer support is the cornerstone of strength for one's journey.“
    Learning from Others
  • Adele's story: “When I found this page, I was like, yes! I'm home! There are other people just like me or who least understand the feeling. “
    Learning from Others
  • Nicole Hoover's story: “I advocate every day for patients who have valve disease by listening to their concerns and helping them make the best decision about their care“
    Learning from Others
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Recent Comments

  • Hugo A Bejar on Nina Bamford's Story
    “cool”
  • Onyinye Felicity on Ask a Texas Heart Institute Doctor
    “Am a lady and my chest is always paining me. I went for x-ray and...”
  • Debra Dye on Jeff Fielding's Story
    “Thanks for sharing your story I am about to undergo valve replacement surgery soon. ...”
  • Chris Herbert on Jeff Fielding's Story
    “This is a great story, Jeff.”

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About Living With Valve Disease

Living with Valve Disease is a project of the Alliance for Aging Research © 2015
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Share Your Story

We want to hear from you! Use the form below to tell us about your or your loved one's experience with heart valve disease. If you can, share the type of valve disease, when it was diagnosed, and what type of treatment received (if applicable).

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*Note that submitted stories will be reviewed and may be featured on this site, on www.ValveDiseaseDay.org, or through other Alliance for Aging Research educational outreach.