Living With Valve Disease

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  • What is Valve Disease?
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  • Reader Story

    Adele's story: “When I found this page, I was like, yes! I'm home! There are other people just like me or who least understand the feeling. “

    My name is Adele and I was born and raised in China until the age of 9.  According to my adoption paper, a police man found me on the street…
    97 days ago | Learning from Others
  • Reader Story

    Alaina Bronski's story: “After numerous failed trips the to ER and my primary care physician that fell on deaf ears, I took my heart into my own hands and made an appointment with…

    I followed my heart. After numerous failed trips the to ER and my primary care physician that fell on deaf ears, I took my heart into my own hands and…
    224 days ago | Learning from Others
  • Reader Story

    Terry Johnson's story: “Did I recognize the signs originally? No, because I had the "it must be my age" or "it could never happen to me" that is too common among men as…

    I always thought heart surgery was for all those much older than me. I’m not overweight and am very active. But that all changed one afternoon while helping my son…
    274 days ago | Learning from Others
  • Reader Story

    Charlene Linden's story

    The aging hearts of our loved ones are multifaceted for sure. Kind, funny, witty, intelligent, brave, accomplished, and if we’re lucky, loving with a lifetime of experiences all wrapped up…
    362 days ago | Learning from Others

Adele's story: “When I found this page, I was like, yes! I'm home! There are other people just like me or who least understand the feeling. “

Alaina Bronski's story: “After numerous failed trips the to ER and my primary care physician that fell on deaf ears, I took my heart into my own hands and made an appointment with…

Terry Johnson's story: “Did I recognize the signs originally? No, because I had the "it must be my age" or "it could never happen to me" that is too common among men as…

Charlene Linden's story

  • Videos
    28 days ago
    Valve disease and heart failure
    Watch this short video from CardioVisual to learn more about how abnormal heart valves can lead to heart failure.
  • General Information
    35 days ago
    6 Tips to Manage Anxiety Before Your TAVR Procedure
    If you have severe aortic stenosis and find yourself feeling anxious about your diagnosis and your upcoming transcatheter aortic valve…
  • General Information
    42 days ago
    National Survey Of Heart Valve Patients Shows Importance Of Seeking Treatment Early
    A new national survey conducted by HeartValveSurgery.com (HVS), and supported by Medtronic, uncovered patient perceptions about heart valve disease and…
  • Articles
    57 days ago
    Race and Risk Post-Surgery: Uncovering Disparities in Aortic Valve Replacement
    According to a study by The Commonwealth Fund, America ranks last among industrialized countries in measures of health equity and access…
  • Publications
    63 days ago
    2020 Valve Disease Day Highlights Brochure Now Available!
    The official Heart Valve Disease Awareness Day 2020 Highlights and Overview brochure is now available! The campaign reached over 248…
  • General Information
    72 days ago
    My Aortic Stenosis Confession: Susan
    I always love to find the silver lining in everything. And for me, the silver lining of aortic stenosis was…
  • Communities
    77 days ago
    Join the HeartValveSurgery.com Newsletter!
    Created by Adam Pick, heart valve disease patient and founder, HeartValveSurgery.com is the #1 doctor-recommended educational resource and online community for…
  • General Information
    86 days ago
    Coronavirus And Your Heart: Coping With Postponed Procedures from CardioSmart
    Many non-urgent tests and procedures have been put on hold because of COVID-19. If you live with a heart condition,…
  • General Information
    92 days ago
    Heart Valve Disease: Treatment With TAVR from CardioSmart
    Transcatheter aortic valve replacement (TAVR) may be an option to fix your heart valve if you have aortic stenosis. Talk with…
  • Reader Story
    224 days ago
    Nicole Hoover's story
    “I advocate every day for patients who have valve disease by listening to their concerns and helping them make the best decision about their care“
  • Reader Story
    224 days ago
    Alaina Bronski's story
    “After numerous failed trips the to ER and my primary care physician that fell on deaf ears, I took my heart into my own hands and made an appointment with…
  • Reader Story
    239 days ago
    Katie Eddington's story
    “No two days are the same, each one is taken in stride, and every moment counted as a blessing.“

Recent Stories

  • Nicole Hoover's story: “I advocate every day for patients who have valve disease by listening to their concerns and helping them make the best decision about their care“
    Learning from Others
  • Alaina Bronski's story: “After numerous failed trips the to ER and my primary care physician that fell on deaf ears, I took my heart into my own hands and made an appointment with…
    Learning from Others
  • Katie Eddington's story: “No two days are the same, each one is taken in stride, and every moment counted as a blessing.“
    Learning from Others
Share Your Story

Recent Comments

  • Hugo A Bejar on Nina Bamford's Story
    “cool”
  • Onyinye Felicity on Ask a Texas Heart Institute Doctor
    “Am a lady and my chest is always paining me. I went for x-ray and...”
  • Debra Dye on Jeff Fielding's Story
    “Thanks for sharing your story I am about to undergo valve replacement surgery soon. ...”
  • Chris Herbert on Jeff Fielding's Story
    “This is a great story, Jeff.”

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202-293-2856
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About Living With Valve Disease

Living with Valve Disease is a project of the Alliance for Aging Research © 2015
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Share Your Story

We want to hear from you! Use the form below to tell us about your or your loved one's experience with heart valve disease. If you can, share the type of valve disease, when it was diagnosed, and what type of treatment received (if applicable).

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*Note that submitted stories will be reviewed and may be featured on this site, on www.ValveDiseaseDay.org, or through other Alliance for Aging Research educational outreach.